We recommend that all patients and supporters learn as much as possible about CLL. Don’t try to learn too much too quickly. Take your time and take it step-by-step. We believe that the well-informed patient will be able to ask the right questions at the right time and to manage their CLL better.
Some of the sources we have found useful are shown below.
This is our on-line forum where you will find information, support and empathy from other patients. The pinned posts hold a wealth of up-to-date information on just about every CLL topic, and the site is administered by our own volunteers.
Leukaemia Care – Chronic Lymphocytic Leukaemia (CLL) A guide for patients (Living with CLL Page 25. Download or order at Leukemia Care’s website.
Macmillan – Understanding Chronic Lymphocytic Leukaemia (CLL) (Wellbeing Page 65) Download or order from Macmillan’s website.
Blood Cancer UK – Chronic Lymphocytic leukaemia (CLL) information booklet. Download or order from Blood Cancer UK’s website.
You will also find a new resource ‘Living well with or after blood cancer’, which includes stories and tips from people affected by blood cancer.
Lymphoma Action gives information on CLL and SLL and how to live well. Visit their website for more information.
Cancer Research UK – Living with Chronic Lymphocytic leukaemia – view on their website.
Maggie’s Centres offer free, practical, emotional and social support to people with cancer and their families and friends. Find out if there is a Maggie’s Centre near you from their website or call 0300 123 1801.
CLL Society: Visit their website.
Patient Power: Visit their website.
Please remember that these sites deal mainly with American patients, and the health system and availability of drugs is often quite different to the UK. However, both sites offer excellent information.
Please see our videos page here
Please see our reports page here