Privacy and Cookie Policies

Privacy Policy

Personal Information

Personal information we collect includes details such as your name, date of birth, email address, postal address, telephone number and credit/debit card details (if you are making a purchase or donation), as well as information you provide in any communications between us.  You will have given us this information whilst signing up as a member, making a donation, registering for an event, interacting with our website or any of the other ways to interconnect with us. 

We will mainly use this information:

If you do not provide this information, we will not be able to process your donation, sign you up for a particular event or provide goods and services you have requested. 

We may also use your personal information:

Sensitive Personal Information

If you share your personal experience or the experiences of a friend or relative, we may also collect this health information. If you provide us with any Sensitive Personal Information by telephone, email or by other means, we will treat that information with extra care and confidentiality and always in accordance with this Privacy Policy.  
You can of course decide if you want to remain anonymous, if you are happy to share your personal details with staff members or if you would like us to share your story with the media or other parties as part of our work telling people’s personal stories about Chronic Lympocytic Luekaemia (for example, on our blogs). 

A special note about the Sensitive Personal Information we hold

Data Protection Law recognises that some categories of personal information are more sensitive. Sensitive Personal Information can include information about a person’s health, race, ethnic origin, political opinions, sex life, sexual orientation or religious beliefs. 

If you contact us at CLL Support through our Helplines or through other more general communications such as blogs or emails, you may choose to provide details of a sensitive nature. We will only use this information:

Profiling: making our work more unique to you

We want to improve how we talk to you and the information we provide through our website, services, products and information. To do this we mays use profiling and screening methods so that we can better understand our supporters, your preferences and needs to provide a better experience for you. 

We may carry out targeted fundraising activities using profiling techniques based on the information that we hold about you. We may also work with third party organisations who provide additional insight, this may include general information about you that is publicly available. 

This information can be appended to the information that you have provided which allows us to use our resources more effectively by better understanding the background of our supporters and making appropriate requests based on what may interest them and their capacity to give. 
  
You can of course opt out of this activity at any time. To do this, email: membership@cllsupport.org.uk

Legal basis for using your information

In some cases, we will only use your personal information where we have your consent or because we need to use it in order to fulfil a contract with you. 
However, there are other lawful reasons that allow us to process your personal information and one of those is called ‘legitimate interests’. This means that the reason that we are processing information is because there is a legitimate interest for CLL Support to process your information to help us to achieve our vision of ensuring that everyone experiencing a Chronic Lympocytic Luekaemia problem gets both support and respect. 

Whenever we process your Personal Information under the ‘legitimate interest’ lawful basis we make sure that we take into account your rights and interests and will not process your personal information if we feel that there is an imbalance.  Some examples of where we have a legitimate interest to process your Personal information are where we contact you about our work via post, use your personal information for data analytics, conducting research to better understand who our supporters are, improving our services, for our legal purposes or for complying with guidance from the Charity Commission. 

Marketing

We will only contact you about our work and how you can support the CLL Support Association by phone, email or text message, if you have agreed for us to contact you in this manner. 
However, if you have provided us with your postal address we may send you information about our work and how you can support The CLL Support Association by mail unless you have told us that you would prefer not to hear from us in that way. 

You can update your choices or stop us sending you these communications at any time by unsubscribing on our newsletter sign up page.

Sharing your Information

The personal information we collect about you will mainly be used by our staff (and volunteers) at CLL Support so that they can support you. 

We will never sell or share your personal information with organisations so that they can contact you for any marketing activities. Nor do we sell any information about your web browsing activity. 

CLL Support may, however, share your information with our trusted partners and suppliers who work with us on or on our behalf, but processing of this information is always carried out under our instruction. We make sure that they store the data securely, delete it when they no longer need it and never use it for any other purposes. Some examples of where we may share your information are with our partners who help us to process donations and claim Gift Aid and our partners who help us to manage our social media accounts. 

We enter into contracts with these service providers that require them to comply with Data Protection Laws and ensure that they have appropriate controls in place to secure your information. 

Legal disclosure

We may disclose your information if required to do so by law (for example, to comply with applicable laws, regulations and codes of practice or in response to a valid request from a competent authority); or, in order to enforce our conditions of sale and other agreements. 

Keeping your information safe

We take looking after your information very seriously. We’ve implemented appropriate physical, technical and organisational measures to protect the personal information we have under our control, both on and off-line, from improper access, use, alteration, destruction and loss. 

Unfortunately, the transmission of information using the internet is not completely secure. Although we do our best to protect your personal information sent to us this way, we cannot guarantee the security of data transmitted to our site. 

Our websites may contain links to other sites. While we try to link only to sites that share our high standards and respect for privacy, we are not responsible for the content or the privacy practices employed by other sites. Please be aware that advertisers or Web sites that have links on our site may collect personally identifiable information about you. This privacy statement does not cover the information practices of those websites or advertisers. 

Any debit or credit card details which we receive on our website are passed securely to Sage Pay our payment processing partner, according to the Payment Card Industry Security Standards. 

How long we hold your information for

We only keep it as long as is reasonable and necessary for the relevant activity, which may be to fulfil statutory obligations (for example, the collection of Gift Aid). 

Your rights

You have various rights in respect of the personal information we hold about you – these are set out in more detail below.  If you wish to exercise any of these rights or make a complaint, you can do so by contacting our Supporter Services team at [insert].  You can also make a complaint to the data protection supervisory authority, the Information Commissioner’s Office, https://ico.org.uk/

Cookies

‘Cookie’ is a name for a small file, usually of letters and numbers, which is downloaded onto your device, like your computer, mobile phone or table when you visit a website. 
They let websites recognise your device, so that the sites can work more effectively, and also gather information about how you use the site. A cookie, by itself, can’t be used to identify you.  

How do we use cookies?

We use cookies to distinguish you from other users of our website. This helps us to provide you with a good experience when you come to our website and also allows us to improve the user experience.   
The cookies we use 
We use the categorisation set out by the International Chamber of Commerce in their UK Cookie Guide.

We use all four categories of cookies:

No Cookies, please

You can opt out of all our cookies (except the strictly necessary ones). Find out how to control and delete cookies in your browser. 
But, if you choose to refuse all cookies, our website may not function for you as we would like it to. 
If you have any questions about how we use cookies, please contact us. 

Monitoring

Your communications with our teams (including by telephone or email) may be monitored for quality control and compliance purposes to ensure that we continuously improve our customer service standards. 

To find out more about this policy and how we look after your personal information, contact membership@cllsupport.org.uk