CLLSA Newsletter Winter 2016

Welcome to the Winter issue of the newsletter! 

You will be pleased to know we have once again been very busy in the last few months and here are some of the is-sues we have been handling. 

As always the introduction of new treatments is never an easy job given all the financial constraints on health budgets nationwide and this time around is no exception. 

NICE says YES to Ibrutinib to treat England and Wales NHS CLL patients

CLLSA are extremely pleased by the NICE decision to approve Ibrutinib to treat NHS England and Wales chronic lymphocytic leukaemia patients.

Today’s Final Appraisal Determination (FAD) recommends that:

1.1Ibrutinib alone is recommended within its marketing authorisation as an option for treating chronic lymphocytic leukaemia in adults:

· who have had at least 1 prior therapy or

New Flyer for 2016

The CLLSA have produced a new flyer - feel free to pass this to anyone you know who is affected by CLL whether Patient, Family Friend or Health Professions especially your GPs surgery.

If you are a health professional or member and would like a supply of our new leaflet to leave at your clinic/surgery  please email our coordinator at and they will be happy to post you some.  

Have your say by taking part in a survey to aid us improve access to appropriate treatments and services.

Dear members

This anonymous patient survey lead by Leukaemia CARE is to aid understanding of the challenges of people affected by a blood cancer and help us to provide the patient voice to improve access to appropriate treatments..

Have your say.

Dr Anna Schuh takes over Chairmanship of the UK CLL Forum

Dr George Follows handed over the Chairmanship of the UK CLL Forum to his colleague from Oxford, Dr Anna Schuh at forums recent meeting on 5 Oct 2016.  Our thanks to Dr George Follows for his ongoing support of the CLL community and congratulations to Dr Anna Schuh on her new role,  Many members will remember Anna's very informative presentation at the Oxford meeting of the CLLSA in 2012.