Phone the CLLSA help line on 0800 977 4396 We’re here to listen
Please note that we operate an answer phone message system,
messages are checked daily and we do our best to respond as quickly
as possible. We are members of the Helpline Partnership
Read more about our helpline here
CLLSA Information Recommended for Newcomers
If you register with the CLLSA you will be forwarded an information pack that includes several of the following patient information booklets.
People can register on the site and we will send you, via email, an electronic patient information pack. Register Here: We can only post the information pack to those without an email who are living in the UK.
UK BASED ON-LINE CLL COMMUNITIES
Sources of Information
There is a lot of information listed below providing access to many of the key reliable UK resources to aid CLL/SLL patients. Read as much or as little as you want or need.
CLLSA is not responsible for information on other internet sites. As with any site, including ours, be a discerning reader- think about what you read from your own health and financial point of view. and check date of publication, admin are in the process of updating this information.
online community (RSS feed from Health unlocked)
In the above video Dr Follows discusses how the new targeted therapies will require discipline and engagement by patients to ensure they take their medications to stay in remission. Longer term the research community is working towards novel none chemo combinations that may produce a durable MRD status, removing the need for continued medication, this could one day translate into a cure.
Above video, With several new medicines being studied in CLL - Chronic Lymphocytic Leukaemia - there are many trials becoming available today in the U.K. It could give you the chance of receiving tomorrow's medicine today. That was discussed at the 9th European Congress on Hematologic Malignancies in Lyon, France. One of the presenters was noted CLL expert Dr. Claire Dearden from the Royal Marsden Hospital and the Institute for Cancer Research in London.