News

UK Initiatives

CLLSA 2014/15 activities, TBC

 

Examples of CLLSA representation in lobbying of policy makers 

 

Members have been contributing in a scheme to engage local MPs, policy makers and stakeholders  to improve access to transformational therapies. CLLSA have been working as members of groups such as  Cancer52 to increase our voice  when lobbying national government.

Getting Involved

In the above video Dr. Follows discusses the current financial climate and the arrival of expensive long term novel therapies to treat CLL is causing much debate about what government can afford.  What can we do to make sure treatments that CLL patients need are available?  “What is cost effective use of NHS money to treat disease”? 

Online Community

CLLSA at HealthUnlocked brings together international CLL patients and carers to allow sharing of experiences of living with CLL/SLL within a supportive group who do "get it", supported by reliable international information resources and perspectives. This partnership will, with your help, continue to develop as a resource that helps many.