CLLSA hosted advocacy development workshop , 20 June, Cambridge, European Advocacy Day.
Leading patient advocates and partner organisations from a number of European countries came together on Friday 20th June 2014 to identify strategies for improving outcomes across the European CLL community.
CLLSA 2014/15 activities, TBC
Examples of CLLSA representation in lobbying of policy makers
Members have been contributing in a scheme to engage local MPs, policy makers and stakeholders to improve access to transformational therapies. CLLSA have been working as members of groups such as Cancer52 to increase our voice when lobbying national government.
In the above video Dr. Follows discusses the current financial climate and the arrival of expensive long term novel therapies to treat CLL is causing much debate about what government can afford. What can we do to make sure treatments that CLL patients need are available? “What is cost effective use of NHS money to treat disease”?