A full 60 members came to the Midlands meeting on the 25th May to listen to Dr Ben Kennedy give a brilliant talk on some of the latest thinking on CLL. Both new attendees and the members who are now regulars agreed that this was a thoroughly enjoyable meeting. The weather was fine, the venue was friendly, and we all had a great time even though we were meeting to discuss the illness that affects us all.
There were just over 50 people at the meeting on July 15th. Dr Duncombe, the speaker, is an expert in CLL drug trials. Drug trials build on the best treatment available for a specific type of CLL patient, you never get a placebo treatment. The standard of care given to the patient who takes part in a drug trial is extremely good.
Our second autumn meeting at GSK house was attended by many enthusiastic people. Many thanks to GSK and especially to Philippa Manning who did the organisation at that end - it all went incredibly well.
It can be daunting to arrive at the headquarters of a global pharmaceutical company with the present level of security alerts in place- but the security people, and all the GSK staff, were inevitable courteous, and we all got in to the meeting.
The Oxford members meeting was held on the 16th March 2012 at the Oxford Belfry Hotel. We decided that this would be our largest meeting to date and were delighted to be able to accommodate 80 people at this event.
The meeting began with an introduction and welcome from two of our Trustees, Chonette Taylor and Andrea Cockburn. They then introduced some of our newer Trustees before commencing the discussion groups.
One layman CLL Support Association member's view of the day (my view that is). Not reviewed by anyone - clearly opinion, all mistakes are mine and mine alone. (Disclaimer over)
The historic Great Hall at St Bartholomew’s Hospital, London, was the magnificent venue for the London meeting of the CLLSA. The meeting was well attended, filling the Hall, and with a good balance between recently diagnosed and pre and post treatment.
Presentations were made by:
Professor Daniel Catovsky is one of the original medical advisors to the CLL Support Association (CLLSA), which celebrates its 8th anniversary this year.
The conference was held near Hinckley Leicestershire over two days to accommodate the largest gathering of CLLSA members to date with many members reacquainting themselves with those they had met at previous meetings and many making new friends and developing new relationships.
It was good to see so many new and familiar faces on the day. Thank you to all who travelled some distance.
You are probably all aware of the changing landscape of CLL therapeutics. There is much to support the feelings of optimism as novel testing and treatments commence clinical trials. Much of the reason for this optimism was discussed at Cardiff.
The members’ meeting, held in Liverpool on the 12th March, was really well attended in spite of the best attempts of the cold, snowy weather to affect attendance. 58 members and volunteers were present to meet and listen to Professor Andrew Pettitt and members of the haematology nursing team from the Royal Liverpool University Hospital.