News

NHS England is currently failing to Fund Ibrutinib in line with NICE Guidance 

David Innes, Chair of the CLL Support Association has written to Rt Hon Jeremy Hunt MP to ask him as Secretary of State for Health and Social Care to ensure NHS England follow their legal obligation to fund drugs indications considered by NICE to be cost-effective. A copy of the letter is available below.

NHS England Failing to Fund Ibrutinib in line with NICE Guidance 

NHS England Failing to Fund Ibrutinib in line with NICE Guidance 

Many of you will have seen the articles in The Times this weekend which have revealed an issue of immense importance to people living with Chronic Lymphocytic Leukaemia by highlighting NHS England's denial of patient access to ibrutinib despite NICE approval. 

 

What has The Times revealed?

NHS England is currently failing to fund ibrutinib in line with NICE guidance. NICE recommends that ibrutinib alone is recommended within its marketing authorisation as an option for treating CLL in adults:

CLLSA - APPG on Blood Cancer Summary of Discussion 17th Jan 2018

A debate took place in Westminster Hall on Blood Cancer Care in the NHS on the 17th Jan 2018. Much of the debate set the scene for the launch of the All-Party Parliamentary Group (APPG) on Blood Cancer inaugural report 'The Hidden Cancer - The Need to Improve Blood Cancer Care.'
 
MPs participating in the debate included:
Henry Smith (Crawley) (Con)
Nick Thomas-Symonds (Torfaen) (Lab)
John Howell (Henley) (Con)
Mark Tami (Alyn and Deeside) (Lab)
Mike Hill (Hartlepool) (Lab)

All Party Parliamentary Group (APPG) on Blood Cancer is being launched at Westminster today

An Important Day for people with CLL

We're delighted to announce that the inaugural report of the All Party Parliamentary Group (APPG) on Blood Cancer is being launched at Westminster today. The report calls to the Government and NHS to ensure that blood cancers and the needs of blood cancer patients are properly addressed. CLLSA has been actively involved in supporting this APPG and will be attending the launch this afternoon........

All Party Parliamentary Group (APPG) on Blood Cancer

We're delighted to announce that the inaugural report of the All Party Parliamentary Group (APPG) on Blood Cancer is being launched at Westminster today. The report calls to the Government and NHS to ensure that blood cancers and the needs of blood cancer patients are properly addressed. CLLSA has been actively involved in supporting this APPG and will be attending the launch this afternoon........

Would you like to read about the APPG on Blood Cancer launch?  Please open the document attached for more details.