CLL NEWS Newsletter of the CLL Support Association
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The majority of those who responded to the QOL study carried out at the end of 2013 reported some degree of fatigue. The message from respondants was clear though different language was used: tired fatigue, low energy.
Is there any research being done into CLL and the origins of this Fatigue which might help us miigate it's effect on QOL.
here we test summary
CLLSA at NICE and preliminary NICE guidance for two new CLL treatments.
The CLLSA regulatory appraisals volunteer group are participating in six NICE consultations. CLLSA representatives commented on the following NICE documents and attended the Scope, Appraisal workshops and participated on appraisal committees to date this year this has resulted in the excellent news that two new treatments have already received preliminary recommendation by NICE for NHS treatment of CLL in England and Wales:
CLL Support Association membership is open to all, is free and lasts a lifetime but we focus our support to cater for the needs of UK CLL patients and carers. You must be over 16 years old to register. In registering as a member you are acknowledging that you are aged 16 or above.
We will not under any circumstances publish your details or share them with any other party. The sole purpose of registration is to ensure that we know the patients etc. that we are serving and that we can provide you with e mails, mailings etc with details of the activities of CLLSA . Whilst we welcome everyone to our mailing list please note that we are a support group for UK patients and carers and we will not be mailing by post any information to any overseas members.
Finally, although a free service, we do need funds to enable us to provide this service which is run by volunteers. We hope that you consider our objects to be worthwhile and that you may consider making a donation to CLLSA.
Thank you for your support.
Middlesex Members Meeting 16th December 2014 PROGRAMME: 10:30 Arrival and Registration with refreshments.
Every meeting that we have, I come away thinking that it was the best ever of a whole run of great meetings.