NHS England have published today the new version 6 of the Cancer Drugs Fund list. Effective from today.
CLL Support Association is a member of The Blood Cancers Alliance, an informal group of all blood cancer charities; who have written to David Cameron and Jeremy Hunt to urge them to find a suitable solution to this wholly unacceptable situation.
The open letter is copied below and has been published in the Times newspaper today 4th November www.thetimes.co.uk/tto/opin...
NICE published Final Guidance today on Idelalisib for treating chronic lymphocytic leukaemia
NICE technology appraisal guidance [TA359] http://www.nice.org.uk/guidance/TA359
This publishing of final guidance moves the treatment of idelalisib plus rituximab one step closer to NHS availability for England and Wales patients with NHS access expected within 3 months.
ST BART’S MEMBERS MEETING - TRAVEL INFORMATION
St Bartholomew's Hospital
Switchboard: 020 3416 5000
St Bartholomew's Hospital is located in the City, close to St Paul’s Cathedral.
You can travel to hospital in a number of ways including on foot, by car, by bike or by public transport.
Plan your journey using the travel information below or the Transport for London journey planner on the right of this page.
Hi everyone it’s time for your annual flu jab, if you haven't already been Jabbed. GP surgeries are vaccinating now.
Although CLL patients may not get the full protection from vaccines, it is recommended that we are vaccinated.
LETTER TO MEMBER OF PARLIAMENT. October 2015
Dear (Name of MP)
Proposed delisting from the Cancer Drugs Fund of therapies for the treatment of relapsed CLL (Chronic Lymphocytic Leukaemia) - Bendamustine and Ibrutinib.
The CLLSA member's letters to MPs campaign to prevent delisting of CLL treatments from the CDF has now ceased following the Novenemer 4th outcomes The letter template is now out of date and longer availble, new letters to MP's are not now required.
The CLLSA apeal against potential CDF delistings has been concluded, the template letter is now out of date and has been removed from the website.
Ok, so I have the booklet "CLL Patient Information" given to me by my haematologist when I was first diagnosed about 6 months ago, but I am struggling to find the next exciting installment.
I need to know what the main lines of treatment are and where the stumbling blocks are in finding an actual cure. Of course I can look up what a kinase inhibitor is but it would be nice to find all the relevant information in one place.