News

Fancy tackling the London 10K at short notice? Places have just come available. See the sights and raise funds for CLLSA on July 10th

We need your help, we have had half a dozen team CLLSA places come available..

Are you a little crazy and fancy a challenge with friends at short notice? ? Do you know a group who you could challenge? Or just fancy challenging yourself?

Cancer Lottery - JOIN campaign asking for fair consideration of new drugs required to treat rarer cancer patients in the UK

Many will have been following the unsatisfactory way in which new drugs for CLL are being assessed and Ibrutinib not gaining a favourable preliminary recommendation at this stage of the assessment process by NICE is of real concern. Recent de-listings of CLL drugs from the Cancer Drugs Fund are adding to worries that this trend could continue after the 1st of July.

CLLSA would like to respond to all this and recommend members who can take a little time, Join the Leukaemia Care campaign with us to ask for fair consideration of new drugs for rarer cancers like CLL.

NICE says NO to ibrutinib again and asks company to put the drug forward for new Cancer Drugs Fund

We are extremely disappointed with the second preliminary decision by the National Institute for Health and Care Excellence (NICE) not to recommend ibrutinib to treat relapsed refractory CLL, this preliminary decision also confirms NICE are ‘minded’ not to recommend ibrutinib for treating patients with a 17p deletion or TP53 mutation.

This latest draft guidance is set out in a second appraisal consultation document    

Recommendations:

CLLSA help line for people living with and affected by CLL, family & friends – CALL 0800 977 4396

We know that a diagnosis of CLL can change everyday life for CLL patients and their families.  We know that it is often difficult to talk to loved ones, family or friends about your condition.

Talking to someone who is a fellow patient can help inform and ease the anxiety.  If you have been recently diagnosed, are waiting for your first chemotherapy, need information or just want to talk………..

 

Fundraiser for CLLSA and Leukaemia & Lymphoma Research (Bloodwise) is Cycling from Lands’ End to John O' Groats

 

Support Jules with his marathon bike ride this summer as he raises funds for CLLSA and Bloodwise. 

“You may all know that I raise funds for Leukaemia and Lymphoma Research but there is another charity that we all couldn't do without; The CLLSA - I think we would all agree that we would be a lot worse off without them.