We have a new flyer - please feel free to distribute to anyone affected by CLL whether Patient, Family, Friend or Health Peofessional especially your GPs surgery. No one should be alone when they are diagnosed.
This anonymous patient survey lead by Leukaemia CARE is to aid understanding of the challenges of people affected by a blood cancer and help us to provide the patient voice to improve access to appropriate treatments..
Have your say.
Dr George Follows handed over the Chairmanship of the UK CLL Forum to his colleague from Oxford, Dr Anna Schuh at forums recent meeting on 5 Oct 2016. Our thanks to Dr George Follows for his ongoing support of the CLL community and congratulations to Dr Anna Schuh on her new role, Many members will remember Anna's very informative presentation at the Oxford meeting of the CLLSA in 2012.
We are very grateful to Dr George Follows for making the slides used at a presentation he gave to the UK CLL Forum on real-world use of ibrutinib on the 5th of October 2016. As you may know, this was a big project that he was keen to complete before he handed over the Chairmanship of the UK CLL Forum to his colleague from Oxford, Anna Schuh. This evaluation has now been accepted for publication and should be easy to find in the journal ‘haematologica’ when it goes on line.
On Thursday I visited Healthunlocked in London for an adminisatrators workshop and to explore with the HU management team their current workflow, commitment and future plans in supporting our community and all those on the HU platform. You will be pleased to learn that our CLLSA CLL support community at HealthUnlocked remains one of the most successful exemplars of what can be achieved to help people live with their condition. This is a result of your work together as members of this community to help each other. Well done everyone.