The UK CLL Forum is comprised of the most eminent CLL doctors in the UK. They have written to The Times newspaper, following up on the original article which appeared last Saturday. An additional article appeared in the Times today.
Here's the link to the article: thetimes.co.uk/article/nhs-...
And this is the letter:
David Innes, Chair of the CLL Support Association has written to Rt Hon Jeremy Hunt MP to ask him as Secretary of State for Health and Social Care to ensure NHS England follow their legal obligation to fund drugs indications considered by NICE to be cost-effective. A copy of the letter is available below.
NHS England Failing to Fund Ibrutinib in line with NICE Guidance
Many of you will have seen the articles in The Times this weekend which have revealed an issue of immense importance to people living with Chronic Lymphocytic Leukaemia by highlighting NHS England's denial of patient access to ibrutinib despite NICE approval.
What has The Times revealed?
NHS England is currently failing to fund ibrutinib in line with NICE guidance. NICE recommends that ibrutinib alone is recommended within its marketing authorisation as an option for treating CLL in adults:
The report with from the Leeds conference is available here. Slides and videos are now attached.
The CLLSA has prepared a summary following the Debate held in Westminster Hall on Blood Cancer in the NHS from a CLL point of view - to read summary click here
An Important Day for people with CLL
We're delighted to announce that the inaugural report of the All Party Parliamentary Group (APPG) on Blood Cancer is being launched at Westminster today. The report calls to the Government and NHS to ensure that blood cancers and the needs of blood cancer patients are properly addressed. CLLSA has been actively involved in supporting this APPG and will be attending the launch this afternoon........
Health Unlocked have set up an Advent Calendar and each new door will highlight a different conditions in the run up to Christmas.
Door 2 highlights CLL and the CLLSA. Open the door and feel free to share the link.
Please consider spreading the work through your social media. Make sure to include the blog link and hashtag "#healthyholidays"
The slides for the presentations given at the CLLSA Conference at Barts on the 7th Nov 2017 are available Here
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