Being diagnosed with Chronic
Lymphocytic Leukaemia or Small Lymphocytic Lymphoma can be a shock. You are
bound to have lots of emotions which can sometimes be difficult to understand.
These are some of the ways that we can help:
We can put you in touch with other patients through our regular conferences throughout the country. A top CLL consultant speaks at every conference, often with talks from Nurse Specialists and doctors dealing with such topics as managing the mental aspects of being diagnosed with cancer, and also fatigue. By speaking with other patients, who will be in various stages of CLL, you will be able to learn how they have been able to manage their condition. You can see if there is a conference coming up in your area here.
We have a very active on-line forum, HealthUnlocked, where you will find support and knowledgeable advice on all things to do with CLL. The site also has a very comprehensive resource of CLL information, which is updated regularly. You can check it out here.
We recently launched a thriving ‘Under 60’ club for those patients within that age bracket. Although the average age for diagnosis of CLL is around 70, there are many patients who are much younger, and we felt that they were not being catered for. If you would like more information about the Under 60 Club, please contact: email@example.com
We believe that the knowledgeable patient will,
by understanding their CLL and their body, be able to receive better treatment,
and are likely to have better remissions. On this website you will find details
of all the latest treatments, as well as how to monitor your CLL and recognise
what to look for.
With our sister charity, Leukaemia Care, we run
a ‘Buddy’ scheme which puts newly diagnosed patients in touch by telephone with
someone, the ‘Buddy’, who can offer support and understanding. All ‘Buddies’
are fully trained, and many patients have benefitted greatly from the service.
Again, with our sister charity, Leukaemia Care,
we run Local Support Groups around the country, where patients can meet for a
coffee and chat. We are intending gradually to expand these, and to see if
there is one in your area, check here.
We produce a regular e-newsletter, sent to all members, giving regular information about new treatments and CLL Support activities. You can enrol and receive the newsletter here.