HealthUnlocked Community Guidelines

The CLL Support Association (CLL Support) HealthUnlocked (HU) community supports those affected by a diagnosis of CLL, their friends, families, loved ones and carers.


Membership is for the above group and qualified professionals allied to the area of blood cancers. The group is moderated by volunteers from the CLL Support Association.


Members of The CLL Support HU community should read the Guidelines below which cover the whole of the HU site including the Posts and Messages in conjunction with community use guidelines below. By using The CL Support HU community you are accepting these posting guidelines and agree to the HealthUnlocked’s site Guidelines and HealthUnlocked’s Terms of Use.

The CLL Support HU community is an open site, this means that any ‘open’ Posts are ‘searchable’ via any Internet search engine and can also be shared on Facebook and/or Twitter. If you would rather your content was not ‘searchable’ and/or ‘Shareable’, make sure you select the visibility status of your post as visible to ‘Community’ only BEFORE you click submit. If you go back and change it later, the Post may still be ‘searchable’ for a short period.
For your own safety, you should not disclose personal information such as your e-mail address, home address or telephone number (or any other information which could identify you indirectly) on The CLL SUPPORT HU community. More information is available in the Pinned Post ‘Online Security starts with YOU! here.

CLL SUPPORT HU Community Posting Guidelines:

  1. All messages placed on The CLL SUPPORT HU community are the opinion of the author and are not the views and opinions of the CLL Support Association. Posts, Answers and Comments posted on the website should be designed to support, not replace, medical advice. People Posting and/or answering on the site should not be assumed to be health professionals.
  2. The aim of The CLL SUPPORT HU community is to provide a safe and friendly environment where users can share information and offer mutual support.
  3. Please be aware that because of the nature of CLL, users need to be mindful and respectful of any content which may cause upset or offend fellow users.
  4. Use by you of The CLL SUPPORT HU community is entirely at your own risk.
  5. All members should conduct themselves at all times with respect, tact and honesty. We want all members to feel safe and comfortable posting here. In order to ensure that happens, any post or comment which causes distress, alarm or harassment to any other person, whether intended or not, may be removed.
  6. Please do not post any information that is unlawful, harmful, threatening, abusive, harassing, vulgar, profane, obscene, may cause personal distress, offensive, defamatory, false, libellous, hateful, racially, sexually or otherwise discriminatory or post any information that is otherwise (at the absolute discretion of the CLL Support Association) objectionable.
  7. You must not post any information that may be invasive of another’s privacy or violate the rights of any other user, or of any other third party in any way.
  8. Do not name and shame identifiable individuals, including other forum members and members of the Admin team. Names/comments will be edited and/or deleted at the discretion of the CLL SUPPORT at HU community administrators.
  9. Messages that are critical of individuals or health professionals, specific treatments, services or treatment units will be removed. This is to ensure that others are not discouraged from getting the help they need.
  10. It is understood that whilst diagnoses, symptoms, conditions and treatments may be subject to speculation and experiential sharing between members, posts must never intend or be construed as giving definite medical or treatment advice. No advice given on the site can be viewed as an alternative to that provided by a member’s professional medical team.
  11. Please report any abusive or inappropriate Posts, Comments or Private Messages. Posts and comments (replies) can be reported to the community admins by clicking on the boxed ‘v’ under the post or comment. Private Messages can be reported to HU support by clicking on the boxed ‘v’ top right of the message.
  12. As a user you must be aware that there will be constant monitoring of The CLL SUPPORT HU community. Any messages which users deem to be unacceptable will be removed at the sole discretion of CLL Support Association administrators.
  13. The CLL SUPPORT HU community Admin team reserves the right to delete any Post or Comment they judge inappropriate without notifying the author. The member may be informed of the reason the content was deleted and invited to rewrite it.
  14. The CLL SUPPORT HU community Admin team reserves the right to make any member ‘read only’. An explanation may be provided via message. Anyone who persistently posts unacceptable messages will be permanently excluded from using this service at the sole discretion of the CLL Support Association Administrators.
  15. The CLL SUPPORT HU community Admin team reserves the right to restrict & remove a member from the register. An explanation may be provided.
  16. You are responsible for the content of the messages you post and any consequences that flow from such posting(s).
  17. If you post a link, please at least explain briefly what people can expect to find if they follow the link. Links without such an introduction/explanation may be deleted
  18. The CLL Support Association cannot be held responsible for the content of external websites.
  19. Do not solicit members to other websites or forums for your own purposes either via posts or the messages system.
  20. If possible, show a clear distinction between personal experience or opinion and evidence-based information.
  21. Do not breach copyright rules by placing documents onto the forum unless you have permission from the author of the document. You can, however, post excerpts with links to the full text of the document. Do not violate, plagiarise, or infringe on the rights of third parties including copyright, trademarks, trade secrets, privacy, personal, publicity or proprietary rights.
  22. The CLL Support Association will not be liable for any errors or omissions in any postings or for any loss or damage incurred as a result of the use of any information contained in the The CLL SUPPORT HU community.
  23. The CLL Support Association makes no guarantee or gives warranty of any kind whatsoever (whether express or implied) in relation to your use of The CLL SUPPORT HU community or any use by third parties.
  24. The CLL Support Association cannot be held responsible for the content of ‘Private Messages’ or the outcome of any action taken as a result of any such message. The messaging system is private and cannot be accessed by the Admin team.
  25. If members choose to make contact via email, telephone or in person, The CLL Support Association cannot be held responsible for the outcome.
  26. The CLL Support Association shall not be liable for any loss or damage (whether direct, indirect, consequential, financial or otherwise) arising from the use of (or in connection with) The CLL SUPPORT HU community.
  27. The CLL SUPPORT HU community is for users who are 16 years and older only.
  28. CLL Support Association cannot be held responsible for any discussions regarding self-treatment or the outcome of any such discussions.
  29. Please do not promote the use of alternative treatments. Any such posts will be removed.
  30. The CLL Support Association will not be liable for any errors or omissions in any postings or for any loss or damage incurred as a result of the use of any information contained in the The CLL SUPPORT HU community.
  31. We reserve the right to remove references to films, television programmes, books, newspapers, magazines etc. which we do not believe are appropriate for The CLL SUPPORT HU community
  32. We don’t allow spamming or advertising. You must not promote or endorse any business or commercial goods. Any Post or Comment considered to be advertising will be edited and/or deleted at the discretion of CLL SUPPORT at HU community administrators.
  33. Any Post or Comment which appears to be asking for money, except for fund-raising for CLL Support Association, will be edited and/or deleted at the discretion of the of CLL SUPPORT at HU community administrators.
  34. Media requests and requests seeking academic or market research information must be made to the CLL Support Association via http://www.cllsupport.org.uk/contact . Such posts are not permitted directly to The CLL SUPPORT HU community.
  35. Posts must not impersonate any person or entity, or misrepresent your association with a person or entity.
  36. The CLL Support Association does not pass any information on about its users.
  37. You must not post any information that is confidential and/or commercially sensitive.
  38. The CLL Support Association reserves the right to make changes to The CLL SUPPORT HU community posting guidelines and terms of use when necessary and without notice, but we will do our best to ensure that any significant changes are made clear to all registered community users.
  39. The CLL Support Association cannot guarantee that you will be protected from software viruses or malicious Internet activity and recommends that you install Internet protection software which includes antivirus, privacy protection and intruder prevention and detection.
  40. If any of these terms are determined to be illegal, invalid, or otherwise unenforceable by reason of the laws of England, then to the extent permitted such illegal, invalid or unenforceable term (s) shall be severed and deleted from these terms and the remaining terms shall survive and continue to be binding and enforceable.

Last reviewed Feb 2016