Please see our instructional videos below for guidance and information on Leukaemia.
Arthur shares with us: how he felt to be diagnosed with CLL, how he was diagnosed, how this was handled, how he coped, impact of CLL, where he is now in his CLL treatment journey and his hope for the future.
Gwyneth Stafford CLL & Lymphoma Nurse Specialist at Cambridge University Hospitals discusses how clinical trials may be first introduced to patients and if a trial is an option that should be considered. What, where, when and if patients fit trial criteria, How the Cambridge centre connects patients with other relevant trial centres, Gwyneth discusses the impact of greater attention and increased monitoring during trials versus greater commitment required from patients themselves to attend and participate in additional protocols during treatment in a trial.
Gwyneth Stafford CLL & Lymphoma Nurse Specialist at Cambridge University Hospitals gives her perspective on the challenges that CLL patients experience when managing their symptoms. A theme running through the video is the importance of keeping the medical team informed and working together to find strategies and support to reduce impact.
The current financial climate and the arrival of expensive long term novel therapies to treat CLL is causing much debate about what government can afford. What can we do to make sure treatments that CLL patients need are available?
The new targeted therapies will require discipline and engagement by patients to ensure they take their medications to stay in remission. Longer term the research community is working towards novel none chemo combinations that may produce a durable MRD status, removing the need then for continued medication, this could one day translate into a cure.
