Whether this is your first time, or you are a regular visitor to this site, welcome, and I hope you find the knowledge, support, and help you seek.
CLL Support is the CLL Community arm of the UK CLL Forum. The Forum encompasses the Clinicians, researchers, and scientists across the UK specialising in CLL treatment. We are here to support people with CLL, their families and friends by supplying the latest proven information on the disease, treatments, and all aspects of living well with CLL.
The charity is unique in being managed and run by people with CLL, or who have a loved one with CLL. We lobby government, pharmaceutical companies, NHS and other relevant bodies to ensure that the best treatments and support are available.
Membership is free and gives you access to free webinars and conferences with leading CLL experts. You will also receive a regular newsletter giving the latest updates and information on the work of the charity. We publish informative booklets and our helpline is always available.
We have over 3,000 members in the UK, and 16,000 members worldwide on our international Health Unlocked forum. If you have CLL, live with someone with CLL or know someone with CLL, we invite you to join us. The more members we have, the greater our ability to influence and reach out to the whole CLL community across the UK. Please take a moment to join and if you would like to help, please donate to keep our work and support free.
I hope you will enjoy the site, and please let us know via the phone line or email if there is anything else we could help with.
On behalf of the trustees
Chair of trustees
To start your journey this page provides an introduction and overview explanation of CLL and its management today in understandable language.
Reliable information and support can aid you to cope with diagnosis and help prepare you to be more involved in your own health care discussions with your doctor. This website we hope helps prepare you to live well with CLL, it is not a substitute for medical care, you should always consult your medical team if you have concerns about your health.
Many also find our online community (HealthUnlocked) helpful too, where members share their own experiences and discuss issues together. Our regular members meetings are also a very effective way of meeting others with CLL and learning from each other and clinical experts.
Useful linksWelcome to the Family by Professor Chris Fegan Further Information and Resources Diagnosis Derek’s Story: His CLL Diagnosis, ‘Watch & Wait’, Involving Others, Hopes and Activities
Chronic Lymphocytic Leukaemia: "An Overview" In this 2014 webcast video with slides George Follows gives an overview of CLL treatment
Over a relatively short time period a remarkable number of effective new therapies have been developed for patients with CLL.
Find out more about the experiences of some of our members by watching this video.Click here to go to our online community
In the video to the right Gwyneth Stafford CLL & Lymphoma Nurse Specialist at Cambridge University Hospitals discusses managing infections and goes on to the challenges that CLL patients experience when managing their symptoms. A theme running through these videos is the importance of keeping the medical team informed and working together to find strategies and support to reduce impact.