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19th March 2021

Important Survey – our CLL doctors need your help

We have been asked by CLL specialists to help them gather more information about the spread and impact of the Covid-19 virus on CLL patients. This is the fourth in a series of surveys to try to find out how Covid-19 is affecting patients.

Why is this important?

Consultants need this information to enable them to make informed decisions, and we have agreed to help, along with our sister charity Leukaemia Care. We have now been living with the COVID-19 pandemic for over 12 months and it continues to have an impact on the lives of CLL patients, their families and supporters. We would like to better understand the impact of this latest stage of the pandemic and changes to guidelines.

How you can help

Please can you answer a handful of further questions. This is an initiative from the UK CLL Forum, the specialist clinical community, in collaboration with two charities, CLL Support and Leukaemia Care.

How will this data be used?

This survey has been created by CLL Support, Leukaemia Care and the UK CLL Forum. Leukaemia Care is the data controller. Data collated and anonymised from this survey will be shared with CLL Support and the UK CLL Forum but will not be used to send further marketing information to you. You will not be added to any databases and if you wish to be placed on charity mailing lists, you will need to contact the charities involved directl

In the last section, there is an option to submit your personal data. By submitting this data, you agree that you are happy to be further contacted about the contents of this survey ONLY. For more information about anything about this data collection, please email advocacy@leukaemiacare.org.uk in the first instance.

What we would like you to do

We are asking everyone to take part in the survey, which will be open until the end of March. If you feel you have the virus we would particularly like your input, but the survey is open to all CLL and SLL patients.

We would be delighted if you feel able to help. Please use this link to the survey, which will give you more information.

Completing the survey will take only a few minutes, but will provide valuable information for our doctors.

Even if you filled in the previous surveys, it is still important for you to complete this follow-up as it will help consultants judge how things are changing over time.

Thank you for your help, it’s really appreciated and will benefit CLL and SLL patients.

Trustees of CLL Support