Cancer52 meeting, Tuesday 27th February 2015

CLLSA are members of the Cancer52 alliance of rare cancer groups. This event is for CLLSA advocacy working group members to attend if available. CLLSA advocacy team representatives are attending the Jan 27th meeting. We are seeking members who may wish to become involved in supporting CLLSA and improving outcomes for our members to join us at future Cancer52 and other meetings associated with current NHS

This event is for CLLSA advocacy working group members to attend if available.

http://www.cancer52.org.uk Cancer52 represents 80 predominantly small cancer charities united by their vision of seeing a better future for everyone affected by the rare and less common cancers, which account for more than half of all cancer deaths in the UK

Cancer52’s aim is to promote improved diagnosis, treatment and support for those affected by rare and less common cancers, leading to improved QOL and increased survival.

CLLSA advocacy team representatives are attending the Jan 27th meeting. We are seeking members who may wish to become involved in supporting CLLSA and improving outcomes for our members to join us at future Cancer52 and other meetings associated with current NHS developments likely to impact on CLL members. If you wish to attend and help us with this work please contact: nick.york’cllsupport.org,uk  for registration details and a briefing.

 

Agenda

 

Time

Speaker

 
       

Topic

13.00

Members

Pre-meeting open networking

13.30

Nicky Combes, SSCRG Programme Manager, National Cancer Intelligence Network (NCIN)

Answering any questions members may have on the NCIN/Cancer52 project

14.00

Clara Mackay, Chair, Cancer52

Formal welcome

14.05

Jane Lyons, CEO, Cancer52

Parliamentary event debrief

14.15

Lucy Ellis-Brookes, Analytical Programme Manager, National Cancer Intelligence Network (NCIN)

NCIN update on joint NCIN/Cancer52 project

SACT update

14.30

All attendees

Round table introductions

14.35

Harpal Kumar, Chief Executive Officer

Cancer Research UK

Cancer Research UK work in rare and less common cancers.

Update on the new Cancer Taskforce

15.30

Kathy Oliver, Chair and Founding Co-Director, International Brain Tumour Alliance (IBTA); Appointed Member (representing rare cancers), European Commission Expert Group on Cancer Control; Co-Founding Member, Rare Cancers Europe (RCE); Appointed Member, EURORDIS Policy Action Group on Rare Cancers

Rare Cancers in Europe - Over Four Million Reasons to Initiate Change

15.45

All attendees

Round table updates

16.00

Meeting Close

Post-meeting open networking until 5pm

 

 

 

 
 

 

Location

The meeting will be held in the Committee Room 4a at the House of Lords, Houses of Parliament, Westminster, London SW1A 2TT.  

Members should enter via the Visitors' Entrance at Cromwell Green (map reference 7) and allow time for passing through security and walking to the meeting room (approx 15 minutes).

 
 
 
 
 

 

When
January 26th, 2015 1:44 PM   to   February 27th, 2015 12:00 AM
Location
Committee Room 4a at the House of Lords, Houses of Parliament
Westminster
London, SW1A 2TT-Caerphilly
United Kingdom
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Introduction