Cambridge Advocacy Meeting 20 Jun 2014

Meeting of Representative of European CLL organazations

Leading patient advocates and partner organizations from a number of European countries came together on Friday to identify strategies for improving outcomes across the European CLL community. Presentations on the power of networked support and information from CLL patient advocates Andrew Schorr of the Patient-Power advocacy network, and Senior Lecturer and PhD student Julia Kennedy from Falmouth University set the scene. Existing models for successful advocacy networks were presented by OPAAL’s Kath Parsons, and Giora Sharif of the European CML Advocacy Group. Patients, carers, clinicians, industry representatives and partner organisations worked together throughout the day to share perspectives on bringing existing European support groups and stakeholders into a more powerful alliance. 

 

When
June 20th, 2014 10:00 AM   to   4:30 PM
Location
Cambridge City Hotel
Downing Street
Cambridge, CBT 3DT
United Kingdom

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Introduction