Leading patient advocates and partner organizations from a number of European countries came together on Friday to identify strategies for improving outcomes across the European CLL community. Presentations on the power of networked support and information from CLL patient advocates Andrew Schorr of the Patient-Power advocacy network, and Senior Lecturer and PhD student Julia Kennedy from Falmouth University set the scene. Existing models for successful advocacy networks were presented by OPAAL’s Kath Parsons, and Giora Sharif of the European CML Advocacy Group. Patients, carers, clinicians, industry representatives and partner organisations worked together throughout the day to share perspectives on bringing existing European support groups and stakeholders into a more powerful alliance.
Cambridge, CBT 3DT
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