Chairmans Report 2015 Winter

Welcome to the winter edition of the CLLSA newsletter. We are sorry that we did not manage to produce an Autumn edition but you will know by now that your trustees have been very busy responding to the demands on our time by partners, and particularly by NICE, as developments in research and treatment of CLL continue to increase rapidly.

To make up for this we have produced a slightly longer publication with two articles by Professor Fegan and Francesco Forconi, one to provide up to date information for the newly diagnosed and one for members who are interested in the latest developments in treatments. As reported in the website update article, this is an example of our close working relationship with CLL consultants and researchers to ensure that you are kept fully informed with the latest information about CLL.

This is evident in the layout of the current website where you can access the latest videos and articles from global CLL experts. The new website will be launched in the next few weeks and I am sure you will be impressed by the range and flexibility of the site. It will enable all members to gain the information they need to ensure that they are supported and reassured on their CLL journey. I wish to thank Nick, Andy and their team of volunteers for the work they have done over the past almost twelve months to enhance this much needed facility and resource.

You will know that we appealed for new trustees earlier in the year and I am delighted to inform you that three new volunteers have joined the CLLSA board. David Innes, Emma Jones and Pauline Stow bring much needed extra assistance to the trustee team and each possess specific skills which will enhance our work and effectiveness. They are looking forward to meeting members at future meetings and will be introducing themselves to you all in due course. Our next meeting will be a joint venture with The Christie Hospital, Manchester and the Royal Liverpool Hospital. Dr Adrian Bloor and Professor Andy Pettitt have agreed to be keynote speakers on the day. It will be held on the 10th March at the Lace Centre, Sefton Park, Liverpool. More detailed information will be circulated in the next few weeks but if you wish to book your place for the event please contact Sarah at membership@cllsupport.org.uk. I look forward to meeting new members at the Liverpool meeting or at future meetings. The full programme of meetings for the year will be published in February.

I hope you find the newsletter interesting. It would be useful if we could have some feedback on areas that could be improved or on items that you would like to see included in future editions.

Finally, on behalf of all of the trustees, I would like to wish you and your families a very happy and healthy New Year. Arthur Graley – Chair