Have your say by taking part in a survey to aid us improve access to appropriate treatments and services.


Dear members

This anonymous patient survey lead by Leukaemia CARE is to aid understanding of the challenges of people affected by a blood cancer and help us to provide the patient voice to improve access to appropriate treatments..

Have your say.

This is a chance to raise awareness of your experience living with CLL. The survey is anonymous and security of data is of paramount importance to us, your input will aid us when we take part in the apprasal of new drugs by organisations like NICE. Your experience will ensure the patient/carer voice is fully understood and represented.

Please take a few moments to have a look at the survey  www.myonlinesurvey.co.uk/LE16ANON

About the Patient Survey

This is a survey about your experiences of blood cancer and the treatment you have received. Leukaemia CARE is interested in finding out more about your experience of treatment for blood cancer, in order to ensure that the services provided meet patient needs and to help focus campaigning efforts on areas where NHS care for blood cancer could be improved.

What can I do to help?

Please complete the questionnaire this should take around 20 minutes to complete. You can complete the questionnaire online at: www.myonlinesurvey.co.uk/LE16ANON

You do not have to take part in the survey. If you do not want to take part in the survey, or do not want to answer some of the questions, you do not need to give a reason.

Who is organising the survey

The survey is being carried out by an experienced health research company, Quality Health, on behalf of Leukaemia CARE, who will produce public reports which will include the anonymous survey findings. These reports will be available to view on the Leukaemia CARE website in early 2017. At no point will your name and address be linked to your responses for this survey. Your responses will only be used to provide information about the quality of services that blood cancer patients have experienced.

Contact for further information

If you would like more information about the survey, protection of your data, or have questions on how to complete the questionnaire, you can call: Quality Health’s FREEPHONE helpline on 0800 783 1775 The line is open between 9am and 5pm, Monday to Friday and there is an answerphone at all other times where you can leave a message.

Thank you Yours sincerely,

Monica Izmajlowicz

Chief Executive Leukaemia CARE