CLL SUPPORT ASSOCIATION
The Great Hall,
St Bartholemew's Hospital (Barts),
London, EC1A 7BE
7 Nov 2017
Dr Piers Patten, Consultant Haematologist at King's College Hospital London gave a talk with the title Latest CLL treatments availsble on the NHS.
This was followed by small group discussions talking about Coping with CLL with a specific focus on the role of careers/supporters and what help they need.
Dr Samir Agrawal, CLLSA trustee Consultant Heamato-oncologist at Barts Hospital talked about The Remote Care Programme they have set up in Bart's. Pauline Stow talks about her experience using the system as a patient.
Professor John Gribben, Centre lead for Haemato-oncology and Professor of Medical Oncology at Barts Hospital London, talked about CAR-T cell therapy.
Olga Janssen, CLLSA Trustee, gave a talk entitled CLLSA goes local. Exploring options for local support groups.
This was followed by small group discussions to help determine what the CLLSA's priorities should be to acheive a good patient experience of care.
Patient/Career CLL Stories Surjeet Soin and Gail Wiegman gave their CLL stories.
Thanks to the Bloodwise and LeukaemiaCARE reps for attending the meeting and bringing along lots of useful material.
Thanks to all the speakers for their time and expertise and to the members who helped make the meeting a great sucess in a rather special location - the Great Hall at Barts with the Hogarth mural on the grand staircase.
Powerpoints of the talks are available below.