CLL Newsletter Summer 2015

 

As your new Chair I am very pleased to give you this short introduction to what has been going on in recent months plus a look ahead to some of our plans. Now is a good time to announce that we are in our 10th year as the CLLSA and the article by Sue Waldie gives you a fascinating insight to how the Association came about. We are very lucky to still have Chonette on the board of trustees and her experience is invaluable to all of us.

We are kept very busy with arranging patient meetings and we have 2 planned for later this year – in Bristol on 28th September and at St Bart's in London on the 30th November. These events are always well attended so please make a note of the dates in your diary. For those of you who have not yet attended one of these meetings you will find the article here onthe March meeting in Liverpool well worth reading!

Fundraising is a vital part of our activities. The good news is that efforts by members have really paid off in recent months and our thanks go out to all who have raised money for us. You will find more details here on page 7. We should also take this opportunity to thank our various supporters in pharmaceutical companies who make an invaluable contribution to our plans.

On the medical front we continue to make representation to NICE and others on the new therapies that are under development. Again we should thank those members who take part in our data gathering because without this input the patient voice would just not be heard.

As you may know from some recent emails from me we are in the process of seeking out some new trustees. The response has been very good and at the time of writing we are finalising our plans. I shall let you know how this develops. 

I hope you enjoy reading this newsletter. Please keep in touch with us with any ideas you may have for fundraising or supporting other members.

We had some sad news earlier this summer when we heard that Derek McGlashan had passed away. Derek was a great asset as our Secretary and he will be sadly missed. Arthur Grayley has written a tribute to Derek and you will find this later in the newsletter.

Many thanks - David Innes

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