Treatments and Trials

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Updated: 2 hours 31 min ago

Increase Red Blood Cells?

07 April 2019
Diagnosed 7 months ago. Age 65, still working, fully functioning. I understand my condition is a combination of increase in white blood cells and decrease in red blood cells (RBC). A reduction in RBC can cause anemia, tiredness, shortness of breath because less oxygen is transported through body. So, I want to fight back on my RBC loss with a variety of natural aids to increase RBC: iron supplements, vitamin B12, etc.
Has anyone else tried this?

Update- My Imbruvica plus Venetoclax Captivate trial.

12 March 2019
Hello,

I am very pleased to report I am still MRD undetectable in the blood and bone Marrow after almost 1 year!!

My Doctor prefers to say MRD- undetectable instead of MRD Negative.

I am most likely on a placebo. Per the trial I am on either a placebo or imbruvica. I am Very very sure a placebo given the fact that my side effects went away. Imbruvica can has some side effects...:). My nails and finger tips have gotten so much better!!

Over all I feel good. I have done a couple nice ski...

Ibrutinib and Obinutuzumab with Venetoclax

17 February 2019
Hello, I am new here. My husband needs to start first time treatment for CLL as soon as possible. He was given info. about the clinical trial which adds Venetoclax to Ibrutinib and Obinutuzmab. Half of the participants will receive the Venetoclax. His other option is to be given just the Ibrutinib. We do not know how to make this decision. Since he usually gets side effects to every drug he takes, he is leaning strongly towards just taking the one drug. His oncologist has not really discussed...

US Government Approval for Funding of CAR-T therapy

17 February 2019
Hi,
CMS approves CAR-T therapy payment, but with significant strings attached. For more details see: cllsociety.org/2019/02/cms-...
This is a positive first step, but only the first step. We will be interviewing experts on funding over the next few weeks .
I am proud of the small role I played in this by going to CMS and lobbying on behalf of future CAR-T patients.
Stay strong.
We are all in this together.
Brian
Brian Koffman MDCM DCFP, DABFM, MS Ed ...

"Whole bacterial" pneumonia vaccine approaches human trials

08 February 2019
"Professor James Paton, a director at GPN Vaccines and Director of the University of Adelaide's Research Centre for Infectious Diseases, says that the current pneumococcal vaccine works by targeting the complex carbohydrates that coat the outside of the Streptococcus pneumoniae bacterium, which is the main cause of pneumonia. He points out that this vaccine, which costs more than US$100 a shot, only covers 13 types of these complex carbohydrates, when there are 98 structurally distinct types....