Who we are

About CLL Support

In 2019 the association has over

3,000

members making it one of the biggest patient-led charities in the UK.

CLL was formed in

2004

when a group of CLL patients and their carers decided that more could be done to support.

Today over

13,500

members of our on-line community share in supporting each other and discussing together challenges, news and information.

Who we are

Welcome to CLL Support, a patient – led UK charity.

Our mission is to support and empower Chronic Lymphocytic Leukaemia (CLL) patients, and Small Lymphocytic Leukaemia (SLL) patients, their families and supporters through education and access to reliable, relevant and current information.

We also represent CLL patients in discussions with government, pharmaceutical companies, other leukaemia charities and the National Institute for Care and Health Excellence (NICE).

Our charity was founded in 2004 by patients with Chronic Lymphocytic Leukaemia (CLL) and their partners. It continues to be run by volunteers, all of whom have been personally affected by CLL or Small Lymphocytic Lymphoma (SLL). CLL and SLL are slightly different forms of the same disease and are managed in the same way.

Currently, we have more than 3,000 members.

Our mission

Our aim is to empower people affected by CLL and related conditions by supporting learning and self-development using reliable and current websites, literature and links to current sources of information, supported by our own website and frequent regional members meetings with expert consultant speakers.

We also have well-established links with national leukaemia and lymphoma charities and other international CLL organisations, all accessible from this site. We provide support to CLL patients and their carers and inform them of development in treatment and research.

CLL overview

Become part of our community

We rely on the generosity of members and others to maintain the high level of service and support which many find so valuable.

Who we are

Lord Forsyth

Honorary President

Marc Auckland

Chair of Trustees

Rupert Beazley

Trustee

Brian Gardom

Trustee

Norah Grant

Trustee

Frank Mercer

Trustee

Gail Wiegman

Trustee

John Moore

Trustee

Lewis Troke

Trustee

Steffi Stutters

Trustee

David Innes

Trustee

John Greensmyth

Trustee

Michael O'Neill

Trustee

Jackie Martin

Technical Advisor

Samir Agrawal

Medical Advisor

Sarah Tobin

Coordinator

More information about us

The trustees are grateful for the support of Dr Samir Agrawal as our medical advisor and of our technical adviser Jackie Martin. We also have a part time coordinator, Sarah Tobin, who has taken on the daily administration of the charity. We are very fortunate to have the support of a number of volunteers, our ‘Champions’, who help us to distribute our leaflets to CLL clinics and assist us in increasing the awareness of CLL Support amongst patients and their supporters.