We host up to six regional conferences for members throughout the UK annually. There is no charge to attend a CLL Support meeting or to register as a member but you must first register as a member before applying for conference places. This can be done here from the website or if already a member you will also receive emailed invitations ahead of meetings and you can book your meeting places directly with membership by email at firstname.lastname@example.org if you prefer.
We host conferences at comfortable and accessible locations with good communications and provide complimentary lunch and refreshments. Conferences are always supported by members from partner charities to ensure the latest supportive literature is available.
Regular conferences of members are a vitally important opportunity for us to come together, meet new friends, share experiences, lessons, and knowledge of resources available to people affected by CLL.
CLLSA conferences provide expert talks from leading medical staff in the field of CLL healthcare and research to ensure members are aware of the latest CLL treatments and clinical trials available. The treatment of CLL is fast changing and potentially undergoing a paradigm shift with step changes in treatment and care as new drugs come into clinical trial and gain regulatory approval for NHS use.
Conferences are one of the best ways to keep abreast of this. hearing first- hand from the clinical community of what is available and what is likely to come available and how this may affect UK patients and their families .
Meeting others who can relate can be a very rewarding and uplifting experience. At meetings we are all in the same boat and can enjoy some open time together.
Demand for conference places is high and judging by the number of members who return to attend conferences at different locations and feedback we receive following conferences we know how much our members value this experience.
2019 saw the trustees broaden the geographical reach of the association. We are working to a calendar to provide events in England, Wales and Scotland and Northern Ireland.
Please be very aware that if you could be infectious then as a matter of health and safety, you should not be putting other CLL patients at risk.
If you have any doubt, then please ask a medical practitioner before you come to any meetings pr conferences with other CLL patients.
Here are some of the symptoms that mean you are infectious and should not expose other people who are immune suppressed- that is at least half the people at a patient meeting.
Do not come if you have shingles, you are infectious until the last blister has healed over.
Do not come if you suspect that you have any infection or condition where you are releasing germs that may infect others. We have published many ways to protect yourself in the self help website section and it is common decency to extend this courtesy to others.
As an alternative to the meetings, we offer several ways to communicate with trustees and others with whom you can share your experiences. We thank those of you who did not come to the meetings when you knew you could be putting others at risk.