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UNDERSTANDING CLL

Understanding Hairy Cell Leukaemia

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Bendamustine is available on the NHS for the treatment of chronic lymphocytic leukaemia – under some circumstances.

CLLSA Chairman Jane Barnard took part in the NICE appraisal of Bendamustine for CLL. In February 20111 NICE announced that bendamustine is now available on the NHS - here are the limitations: 

  • you have chronic lymphocytic leukaemia of Binet stage B or C that has not been treated before and
  • you cannot have chemotherapy with a drug called fludarabine.

See the NICE (National Institute for Health and Clinical Excellence http://guidance.nice.org.uk/TA216   for the full text.

So what do you do if your haematology team feels that you need Bendamustine but you are not eligible by the rules? Your clinician may choose to start by applying to the Individual Funding Requests/Exceptional Treatments; if this fails, there is now the Cancer Drugs Fund that the consultant can appeal to. There is no guarantee that funding would be made available, but in some areas there are now 2 possible routes to get a drug.

NHS Scotland followed the NICE Guidance, and NHS Wales routinely complies with NICE Guidance as does Health and Social Care in Northern Ireland.

 

   
         

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