News

Chairman's letter to members - The outcome and next steps - CLLSA Campaign on delisting of CLL drugs from the Cancer Drugs Fund

Thank you to all our members who supported the CLLSA Campaign to appeal against the delisting of Ibrutinib and Bendamustine for the treatment of relapsed/refractory CLL from the Cancer Drugs Fund.

We have had a great response from you and more than 150 members wrote to their MP, and several also visited their MP. This is a tremendous response so thank you again.

David completes the Great Birmingham Run as the Hulk! For his mum and CLLSA

David completed the  "Morrisons Great Birminghan Run" last month (on Oct 18th). It is a half marathon, and David finished in just under 1 hr 37 minutes, even though he was dressed as "The Hulk!".

This year David chose to race the Great Birmingham Run for a cause very close to his heart.  His mum suffers from Chronic Lymphocytic Leukaemia, so David wanted to raise money for a charity "that has really helped her over the last few years".

 

David had a few mishaps with practice runs in "Hulk" costumes before the actual event.

Blood Cancers Alliance response to Cancer Drugs Fund delistings - Letter published in the Times today

CLL Support Association is a member of The Blood Cancers Alliance, an informal group of all blood cancer charities; who have written to David Cameron and Jeremy Hunt to urge them to find a suitable solution to this wholly unacceptable situation.

The open letter is copied below and has been published in the Times newspaper today 4th November www.thetimes.co.uk/tto/opin...

NICE publish final guidance for idelalisib to treat CLL, moving England and Wales NHS access closer

NICE published Final Guidance today on Idelalisib for treating chronic lymphocytic leukaemia

NICE technology appraisal guidance [TA359] http://www.nice.org.uk/guidance/TA359

 

This publishing of final guidance moves the treatment of idelalisib plus rituximab one step closer to NHS availability for England and Wales patients with NHS access expected within 3 months.

 

St Bart's CLLSA members meeting Nov 30th 2015 - TRAVEL INFORMATION

 

ST BART’S MEMBERS MEETING - TRAVEL INFORMATION

Great Hall

St Bartholomew's Hospital
West Smithfield
London
EC1A 7BE

 Switchboard: 020 3416 5000

St Bartholomew's Hospital is located in the City, close to St Paul’s Cathedral.

You can travel to hospital in a number of ways including on foot, by car, by bike or by public transport.

Plan your journey using the travel information below or the Transport for London journey planner on the right of this page.

By bus