News

Help with Membership Login

 

 Joining for the first time

New visitors can register for membership using the join menu see lower right on the lower menu. An email will be sent containing a time limited (24hrs) link to your profile. Use the first link in the email to access your profile and update your details and then the second link to take you to the page where you can create a password and username.

Frequently Asked Questions FAQ

Q. Why do I need to login to CLLSA site?

There are features available from the site which are only available to members. Members can help ensure their information is accurate, register online for members meetings and will be able to access the forums when they go live.

Q. Is the login for CLLSA website different from CLLSA on Health Unlocked?

CLL Support Association responds to NHS consultation on the proposals for the new Cancer Drugs Fund operating model

‘The aim of the new CDF is to help patients receive new treatments with genuine promise, while real world evidence is collected for up to two years on how well they work in practice. This will then help determine whether the treatment should be accepted for routine use in the NHS in the future.

The original CDF was established in 2011 to fund cancer drugs in England that are not currently approved by NICE.

Overview

NHS England consultation on Cancer Drugs Fund

NHS England and NICE ask for views on the future direction of the Cancer Drugs Fund

As part of the NHS consultation CLL support Association will be assessing the proposals in detail over the next few weeks, attending briefing meetings and are preparing a CLLSA consulation response and continuing to work with the Blood Cancers Alliance. Further information will be published in due course.

The Future of the Cancer Drugs Fund, about the consultation and proposed changes to how the Cancer Drugs Fund will be operated:

2015 CLL Support Association website & meetings surveys

We would really appreciate your input  with providing us feedback to aid us improve members' experience. Can you help us by taking part in 2 short, easy to complete, surveys that should take no more than 5 minutes each. 

 

The first survey is to get opinions from our members about this website which has now been live for 9 months.  

 

Click here to begin the website survey

 

Meetings in planning and set up for 2016, Starting with March 3rd or 10th Nottingham

 

Meetings are currently in set up and planning for 2016: Starting in March either on the 3rd or 10th at Nottingham, June/July Glasgow, Sept Southampton & November/December London

As details come availble and meetings, dates and venues are able to be confirmed these will be released here on the website.

 

Watch this space

 

 

Brief overview of the recent meeting at St Bart's Hospital Great Hall

Brief overview of patient meeting at Bart's Meeting in London 

The meeting started with picking up our name badges before ascending the grand staircase past the large paintings on the walls, painted by William Hogarth, and then on into the Great Hall for a coffee and chat as people arrived. 

The Grand Staircase left , photo thank to the Friends of the Great Hall