CLLSA Videos

What is CLL/SLL

Wednesday 10th September 2014

In the above video a world-renowned CLL expert from MD Anderson Cancer Center, Dr. William Wierda, very briefly explains the difference between CLL (chronic lymphocytic leukaemia) and SLL (small lymphocytic lymphoma). 

Watch and wait

Wednesday 10th September 2014

For many, it's hard to understand why you would wait to treat cancer. In the above video, CLL experts, Dr. Michael Keating and Dr. Januario Castro, explain why it's necessary and beneficial to watch and wait with CLL. Dr. Castro shares the reasoning behind waiting to treat the condition, including lack of symptoms as well as side effects and toxicities. Dr. Keating explains how CLL is different from other cancers in that it's important to study the behaviour (watch) of this particular disease in order to decide the best treatment approach and when to begin treatment.

Watch and wait

Wednesday 10th September 2014

For many, it's hard to understand why you would wait to treat cancer. In the above video, CLL experts, Dr. Michael Keating and Dr. Januario Castro, explain why it's necessary and beneficial to watch and wait with CLL. Dr. Castro shares the reasoning behind waiting to treat the condition, including lack of symptoms as well as side effects and toxicities. Dr. Keating explains how CLL is different from other cancers in that it's important to study the behaviour (watch) of this particular disease in order to decide the best treatment approach and when to begin treatment.

Prognosis

Wednesday 10th September 2014

In the above video Dr George Follows discusses testing, diagnosis and genetic profiling in CLL.

Much discussion is required between the patient and doctor when understanding where you are, as tests may be better at predicting for populations and there is much individual variation to consider.

Understanding your blood results

Wednesday 10th September 2014

 

 

Understanding Your Blood Results

Information videos by Dr Susan Leclair, Chancellor Professor in the Department of Medical Laboratory Science at the University of Massachusetts:  

The videos will start as soon as the page opens:

Clinical Trials

Wednesday 10th September 2014

In the above video Dr. Follows discusses clinical trials, they are not for everyone. Suitability is an “individual thing” and requires consideration of many factors and discussion between the CLL patient and Doctor.

Q1) Do you think joining clinical trials is a way for CLL patients to get around access problems in the NHS?
Q2) Can you expect to have to travel to join a CLL clinical trial?

 

Living with CLL/SLL

Wednesday 10th September 2014

In the above video from the CLLSA playlist; Gwyneth Stafford CLL & Lymphoma Nurse Specialist at Cambridge University Hospitals discusses managing infections and goes on to   the challenges that CLL patients experience when managing their symptoms. A theme running through these videos is the importance of keeping the medical team informed and working together to find strategies and support to reduce impact.

Symptoms, Side Effects, Work

Wednesday 10th September 2014

 

Prof Chris Fegan, from the Cardiff CLL research group, speaks at the Cardiff LLR sponsored open day in 2012. Watch and listen to the above presentation as he discusses and explains some of the problems that may be experience by people with CLL and the spectrum of challenges that are not often easy to quantify.

Self Help Strategies

Wednesday 10th September 2014

In the above video from the CLLSA playlist; Gwyneth Stafford CLL & Lymphoma Nurse Specialist at Cambridge University Hospitals discusses managing infections

Novel Therapies

Wednesday 10th September 2014

In the above video Professors Simon Rule, Peter Hillmen and John Gribben are leading UK clinical researchers with a special interest in CLL. In this brief news report from this year's EHA meeting in Milan they share insights into the promising future for CLL treatment as greater understanding of the biology of this complex disease brings with it an increasing range of potential therapies.