We have a new flyer - please feel free to distribute to anyone affected by CLL whether Patient, Family, Friend or Health Peofessional especially your GPs surgery. No one should be alone when they are diagnosed.
This anonymous patient survey lead by Leukaemia CARE is to aid understanding of the challenges of people affected by a blood cancer and help us to provide the patient voice to improve access to appropriate treatments..
Have your say.
Dr George Follows handed over the Chairmanship of the UK CLL Forum to his colleague from Oxford, Dr Anna Schuh at forums recent meeting on 5 Oct 2016. Our thanks to Dr George Follows for his ongoing support of the CLL community and congratulations to Dr Anna Schuh on her new role, Many members will remember Anna's very informative presentation at the Oxford meeting of the CLLSA in 2012.
We are very grateful to Dr George Follows for making the slides used at a presentation he gave to the UK CLL Forum on real-world use of ibrutinib on the 5th of October 2016. As you may know, this was a big project that he was keen to complete before he handed over the Chairmanship of the UK CLL Forum to his colleague from Oxford, Anna Schuh. This evaluation has now been accepted for publication and should be easy to find in the journal ‘haematologica’ when it goes on line.
On Thursday I visited Healthunlocked in London for an adminisatrators workshop and to explore with the HU management team their current workflow, commitment and future plans in supporting our community and all those on the HU platform. You will be pleased to learn that our CLLSA CLL support community at HealthUnlocked remains one of the most successful exemplars of what can be achieved to help people live with their condition. This is a result of your work together as members of this community to help each other. Well done everyone.
The Flyer is hard at it cycling from Land's End to John O'Groats as a challenge for someone living with CLL to raise funds to help support the work of CLLSA.
Yesterday the Flyer arrived in Scotland after nine tough days in the saddle and tributes the day's ride from Keswick to Moffatt to Tricia who sadly died on 8th June
Today three brave fundraisers tackled The Dragon Duathlon to raise funds for CLLSA,
The Dragon Duathlon is a brand new, unique extreme duathlon event where participants have to travel the length of Wales non-stop, riding coast to coast while tackling the Welsh 3 Peaks by foot. The target; complete the course in under 24 hours.
Lyndon’s team achieved this in an incredible 20.5 hours
We need your help, we have had half a dozen team CLLSA places come available..
Are you a little crazy and fancy a challenge with friends at short notice? ? Do you know a group who you could challenge? Or just fancy challenging yourself?
Support Jules with his marathon bike ride this summer as he raises funds for CLLSA and Bloodwise.
“You may all know that I raise funds for Leukaemia and Lymphoma Research but there is another charity that we all couldn't do without; The CLLSA - I think we would all agree that we would be a lot worse off without them.