The room has been donated
for the day by Glaxo Smith Kline and there will be some GSK
observers present to help the day go well.
The main purpose of all the
patient meetings is for you, the patient, carer or friend to
meet other people with CLL, and to exchange experiences.
The programme is still
being developed, but at the moment as well as the general
discussion groups we are offering a seminar on `I don't even
know what to ask' for both newly diagnosed patients and
anyone who has concerns; CLL is a disease that is not
straightforward, and it is difficult to understand.
We will also hold a seminar
on `what is it like, actually having treatment?'. For both
of these seminars, the trustees leading the groups hope that
you will input as well as making suggestions of their own.
The full programme will
follow, but we would appreciate it if you would tell us now
if you want to attend as we need numbers for catering.
Please contact the
trustees' Personal Assistant at
trustees.pa@cllsupport.org.uk , or telephone the
Free phone membership line, 08009774396 and leave a message,
or write to CLL Support Association, 39-40 Eagle Street,
London, WC1R 4TH
