All CLL patients are invited to join this study which involves providing a small blood sample and a mouthwash (for DNA analysis) and to complete a Family History Questionnaire and a Consent Form. If you wish to participate in this study, and I would encourage all members to do so, then please send your name and mailing address to:

FCLL Study Coordinator

Section of Cancer Genetics
The Institute of Cancer Research

Cotswold Road,

Sutton
Surrey
SM2 5NG

You will be sent a welcome pack including FREEPOST envelopes for replies together with sample collection systems. Patients can then take the sample collection kit to their next outpatient's clinic or make an appointment with their GP, who can take the samples for them.

I have participated in this survey, which is the biggest of its type in the world, and it really is very simple. If you have any questions then you can contact the FCLL Study Coordinator directly on 020 8722 4431 or FCLLstudy@icr.ac.uk

If patients have other family members that are also affected with CLL or other B-cell disorder, the research team may seek permission to contact these family members so that they can also be invited to join the study. However this would require your prior written consent before they contact other family members.

Note that if you do not live in the UK you can still participate in this research programme.

So that's it and it's your chance to participate in world class UK based research that really could improve the understanding of why people get CLL. What could be more useful than that?

Howard Pearce

Questions or problems regarding this web site should be directed to the CLL Support Association.
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