About the CLL Support Association CLLSA

 About the CLLSA

The Chronic Lymphocytic Leukaemia Support Association (CLLSA) was formed in 2004 when a group of CLL patients and their carers decided that more could be done to support CLL treatment and research and to help patients by establishing a UK support group. Subsequently, the CLLSA was established as an official charity in August 2005.

Since its inception the association has relied heavily on its trustees and medical advisers and they all have made their own unique contribution to the development and growth of the association.

In 2015 the association has  over 1,500 members, making it one of the biggest patient-led charities in the UK.

The purpose of the CLLSA is to provide support to CLL patients and their carers by keeping them informed of recent and relevant developments in CLL treatment and research and to provide opportunities for awareness raising and mutual support through regular meetings.

Our aim is to empower people affected by CLL and related conditions by supporting learning and self-development using reliable and current websites, literature, and links to current sources of information, supported by our own website and frequent regional members meetings with expert consultant speakers. We also have well-established links with national leukaemia and lymphoma charities and other international CLL organisations, all accessible from this site.

Membership of the association and our on-line community has grown considerably over recent years. Today approx 2,600 members of our on-line community share in supporting each other and discussing together challenges, news and information.

Governance

The Board of Trustees is responsible for the overall management and administration of the association.

Currently there are 9 trustees (all patients/carers and volunteers) for the association. Trustees are recruited from members of the association who express an interest in the role. They are appointed  following discussion with a panel of trustees who decide if they have the appropriate knowledge and skills to contribute to the development of the association. 

The current trustees are:

David Innes

Chair

Andrea Cockburn

 

Dr Samir Agrawal

 

Emma Jones

 

John Moore

 

Olga Janssen  
David Critchley  

Rupert Beazley

 

Frank Mercer 

 

Chonette Taylor

 

Nick York

 

 

The trustees are supported by a part time coordinator who has taken on the daily administration of the charity.

We are also fortunate to have the support of a number of volunteers who take responsibility for aspects of the organisation of the work of the CLLSA. These include editing the association’s newsletter, supporting the planning of patient meetings and representing the association in discussion at NICE or at other groups organised by the NHS or other relevant organisations.