CLL Support Association

Together fighting chronic lymphocytic leukaemia

 

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THE ASSOCIATION
Patient Meetings
Contact Us
UNDERSTANDING CLL
PATIENT/CARER SERVICES
 

Welcome to the Chronic Lymphocytic Leukaemia Support Association (CLLSA), the UK's only charity specifically for Chronic Lymphocytic Leukaemia (CLL).

The aim of this site is to be the leading one-stop resource for patients in the UK with CLL and their carers.  We aim to provide accurate and up-to-date information on CLL in a patient friendly format. We hope that you find our services of value.  Please register for your free membership of the association and we can then keep you informed of the latest information on CLL.

There will be a meeting of the CLLSA at GSK House, 980 Great West Road,  Brentford, Middlesex, TW8 9GS  on 21st September 2010, 11.30 - 16.00 hours. For details see meetings page

 

Self Assessment - How are you coping, Really?

MacMillan have just issued a really good guide to Financial Supports and Benefits. It is an interactive programme, and while you can decide to go further and send your details to MacMillan, you do not have to. But there are other, perhaps more important reasons for doing the quiz.

We all ‘make do’ in our lives when we are ill. Whether you want to claim or not, this programme will let you know just how many areas where you are compromising.

 I was surprised by the effect that CLL was still having on my life, even though I have started to recover from treatment. Many of us are hard on ourselves when we feel it is difficult to contribute to our families or to society. Using this interactive guide you can find out if you can occasionally be justified in taking life a bit easier. Here is the link; http://www.macmillan.org.uk/HowWeCanHelp/FinancialSupport/BenefitsMadeClear.aspx

Rituximab; Mabthera.

NICE has approved the use of Rituximab, a monoclonal antibody, in combination chemotherapy for first line treatment of CLL in the UK.

 

19th January, 2010: The Scottish Medicines commission ruled that Scotland is the first part of the UK to recommend Rituximab with any suitable  chemotherapy combinations for CLL patients, not only those having first line treatment but second and subsequent treatments. This improves the patient’s chance of a deeper, longer remission. Practically speaking, it means that patients who are not fit enough to have FCR, a very demanding treatment, may have Rituximab added to the therapy their medical team feel it is appropriate. NICE intends to rule on second and subsequent treatments in April, for the rest of the UK.

Also see Newsletters for advise on Swine Flu and advice for Carers at the new "Carers' Corner".

 

   

Questions or problems regarding this web site should be directed to the CLL Support Association.
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