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Welcome to the Chronic Lymphocytic
Leukaemia Support Association (CLLSA), the UK's only charity specifically
for Chronic Lymphocytic Leukaemia (CLL).
The aim of this site is to
be the leading one-stop resource for patients in the UK with CLL and their
carers. We aim to provide accurate and up-to-date information on CLL
in a patient friendly format. We hope that you find our services of value.
Please register for your free membership of the association and we can then
keep you informed of the latest information on CLL.
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There will be a
meeting of the CLLSA at
GSK
House, 980 Great West Road, Brentford, Middlesex, TW8 9GS
on
21st
September 2010, 11.30 - 16.00 hours. For details see
meetings page |
Self Assessment - How
are you coping, Really?
MacMillan have just
issued a really good guide to Financial Supports and
Benefits. It is an interactive programme, and while you
can decide to go further and send your details to
MacMillan, you do not have to. But there are other,
perhaps more important reasons for doing the quiz.
We all ‘make do’ in our
lives when we are ill. Whether you want to claim or not,
this programme will let you know just how many areas
where you are compromising.
I was surprised by the
effect that CLL was still having on my life, even though
I have started to recover from treatment. Many of us are
hard on ourselves when we feel it is difficult to
contribute to our families or to society. Using this
interactive guide you can find out if you can
occasionally be justified in taking life a bit easier.
Here is the link;
http://www.macmillan.org.uk/HowWeCanHelp/FinancialSupport/BenefitsMadeClear.aspx
Rituximab; Mabthera.
NICE has approved the
use of Rituximab, a monoclonal antibody, in combination
chemotherapy for first line treatment of CLL in the UK.
19th
January, 2010: The Scottish Medicines commission ruled
that Scotland is the first part of the UK to recommend
Rituximab with any suitable chemotherapy combinations
for CLL patients, not only those having first line
treatment but second and subsequent treatments. This
improves the patient’s chance of a deeper, longer
remission. Practically speaking, it means that patients
who are not fit enough to have FCR, a very demanding
treatment, may have Rituximab added to the therapy their
medical team feel it is appropriate. NICE intends to
rule on second and subsequent treatments in April, for
the rest of the UK.
Also see
Newsletters for advise on
Swine Flu and advice for Carers at the new "Carers'
Corner".
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